Dysunderstood aims to raise awareness and enhance education on infection-associated chronic conditions (IACCs) like ME/CFS, Long COVID, and dysautonomia, while offering a supportive community for those affected by these misunderstood disorders.

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control. People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, and in severe cases, death. (source: Dysautonomia International)

The most common response for how individuals describe their experience with dysautonomia, chronic illness, and disability=

Misunderstood

• 1 in 100 young people will develop dysautonomia.

• More than 70 MILLION people worldwide are living with dysautonomia.

• The average patient waits 6 years to be diagnosed with dysautonomia